fallingdowntherainbow

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Our time capsule of health …

on April 14, 2012
Today is the first day of a 30-day, 30-post Health Activist Writer’s Month Challenge. I thought it would be a great exercise for writing every day and talking about raising my special needs child.Today’s prompt is Pretend you’re making a time capsule of your daughter’s health that won’t be opened until 2112. What’s in it? What would people think of it when they found it?

If I were to create a time capsule that would be opened in 2112 of C’s  health the first distinction is that it would have to be quite large.
I’d be sure to add C’s  medical records.

Comparing C’s old paper chart, the thickness of three telephone books, and C’s chart that comprises paper and electronic medical records (EMR), which is also very thick for just for her 2 short years of her life it would be would be interesting for anyone finding the capsule
.
I’d like to think that the people of the future would mark EMR as a milestone in medical history, comparing it to other changes, such as imaging technology.

But I know better. What’s in the records themselves might prove to be a more dramatic, anthropological tale.

If they were to be scoured they would learn about C’s very difficult entry into this world and her tragic begining into this world.
What’s more is they’d see into humanity – how fallible even the ‘best of the best’ are in their every day jobs. Looking at a larger timeline of medicine they might see all of the mistakes made in transferring over to EMR from paper, or perhaps they’ve gone back to the old way by then. Probably not.
Other thing’s i would include is the endless can of Pedisure and Ele Care i have fed to C, the endless syringes , the tons of empty orange medicine bottles and the endless . And i would also include her nebulizer and the endless pacifiers we go thru and the endless bottles , bibs and burp cloths we go thru.
Yeah our time capsules for our family could very well be considered a little land fill.
While my hope for this time capsule to be a bit nostalgic I feel when I think about living in a time that’s simpler, I know better.
The health (or sometimes lack thereof) captured would show a time of challenging, constant care-giving and endless attempts at recycling all of the medical waste produced in our home. Although i know we are not alone in our journey of raising a peanut with special needs.
What would you put in a time capsule for your children?
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